That's a horrible disease to walk around with and since it's rare, there aren't the funds for it from the state.  Luckily, with so few sufferers, funds to fix it will be easy to pull from ordinary people.  I'm still trying to get stem cells from Putin.  I love how you Russians do this.  In my country, if I asked for stem cells, someone would try to kill me for being a rose.  My family got out of it in a sneaky mannerism.

To term it as incuarable and genetic,means that research people have not stopped looking for the cure.If genetic, logic dictates we not able to decipher the workings of our bodies.And how our bodies can combat deseased genes,which in all probility is impoosible to detect,as it can lie dormant for generations ,and in which stage in a person life the defective deseased cell will reproduce the systom or illness.Cancer an example ,no one knows when the cell will become active,we all play russian roulette with cancer because it is man made,i.,e polluction of our soil for profitabilty. i.e., enhancement of the natural process of growing.